Addressing Rare Diseases Using Liver Transplantation
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Thu May 01

08:00 - 08:10 General Session: Welcome Remarks
Opening
Alisha Mavis, United States
08:10 - 09:25 General Session: Session 1 - Non-hepatoblastoma Liver Tumors
Through the lens of the oncologist
Peng Wu, United States
Through the lens of the hepatologist
Anna Peters, United States
Robotic tumor resection
Jason Hawksworth, United States
Liver transplantation
Blayne Sayed, United States
Panel Discussion
Panel Discussion, United States
09:25 - 10:00 General Session: Session 2 - PFEP
PFEP chair address
Brittany Munn, United States
Patient/Family
Neshea Harrison, United States
Panel Discussion: Brittany Munn, Neshea Harrison
Panel Discussion, United States
10:15 - 11:45 General Session: Session 3 - Rare Diseases that Benefit from Liver Transplantation
WolcottRallisonSyndrome(WRS) - New concepts
Amrita Narang, United States
Budd Chiari Syndrome - Peri and post-operative considerations
Nada Yazigi, United States
Protein C deficiency - Peri and post-operative considerations
Greg Tiao, United States
Panel Discussion: Michael Keller, Yaser Diab, Nada Yazigi, Greg Tiao
Panel Discussion, United States
11:45 - 13:00 Breakout Session: Multi Disciplinary & Registry
Breakout 1B -Multi Disciplinary/Registry Lunch Breakout
Jessica Hollenbeck, United States
13:00 - 14:00 General Session: Session 4 - Can we do more to decrease wait time of children on the liver transplant list?
Split and Domino liver transplantation
Gabriel Gondolesi, United States
Paired liver exchange transplant (recording)
Megan Adams, United States
Normotherimic Machine Perfusion of Extended Critria Organs
Alexander Kroemer, United States
Panel Discussion: Gabriel Gondolesi, Megan Adams, Alexander Kroemer
Panel Discussion, United States
14:10 - 15:10 Breakout Session: Breakout 2A - Training the Future of Transplantation
The power of SPLIT-initiated research: Live Vaccines in an Era of Measles Outbreasks
Amy Feldman, United States
Pediatric or Transplant Surgery: Which comes first and does apprenticeship play a role?
Kyle Soltys, United States
Panel Discussion: Amy Feldman, Kyle Soltys
Panel Discussion, United States
14:10 - 15:10 Breakout Session: Breakout 2B - Multi-Disciplinary
Recording: Antibody mediated rejection: Reviewed the basics
Dana Mannino, United States
Ethics of substance use, risk behaviors, and ingestions in pediatric liver transplantation - Stephen Molitor
Jill Plevinsky, United States
15:15 - 16:50 General Session: Session 5 - Metabolic Disease: To Transplant or Not to Transplant
The changing face of metabolic disease – is the future in transplantation?
Kimberly Chapman, United States
The parental perspective
Hoanh Nguyen, United States
When liver transplantation is required
Tom Fishbein, United States
Protein C deficiency - Hematologic considerations
Gary Kupfer, United States
Panel Discussion: Hoanh Nguyen, Tom Fishbein, Gary Kupfer
Panel Discussion, United States
16:50 - 17:30 General Session: Session 6 - SPLIT Committee Highlights
Latest from research and P&P
Pamela Valentino, United States
UNOS Changes and the Impact on Kids
Amber Hildreth, United States
Question and Answers: Pamela Valentino, Amber Hildreth
Panel Discussion, United States

Fri May 02

08:05 - 09:50 General Session: Session 7 - Rare Diseases that Benefit from Liver Transplantation (Part 2)
Immunodeficiencies and liver transplantation - The hepatologists’ perspective
Dino Hadzic, United Kingdom
Immunodeficiencies and liver transplantation - Clinical considerations from the BMT perspective
Paul Szabolcs, United States
Hematologic disorders in liver disease - The Translational research perspective
Matthew McConnell, United States
Hematologic disorders in liver disease - Sickle cell disease
Bernadette Vitola, United States
Hematologic disorders in liver disease - Liver transplantation in sickle cell disease
Pamela Valentino, United States
Panel Discussion: Dino Hadzic, Paul Szabolcs, Matthew McConnell, Bernadette Vitola, Pamela Valentino
Panel Discussion, United States
09:50 - 10:45 General Session: Session 8 - Intestinal Failure Associated Liver Disease
Important nutritional aspects of intestinal failure
Batul Kaj-Carbaidwala, United States
Intestinal failure associated liver disease - New concepts
Yoyo Zhang, United States
Intestinal failure associated liver disease - Transplant considerations
Gabriel Gondolesi, United States
Panel Discussion: Batul Kaj-Carbaidwala, Yoyo Zhang, Gabriel Gondolesi
Panel Discussion, United States
11:00 - 12:00 Oral Abstracts Session: Session 9 - Oral Abstract Presentations & Travel Awards
Oral Abstract # 1: A thin echogenicity at the anterior aspect of the right portal vein may help distinguish between biliary atresia and Alagille Syndrome
Tebyan Rabbani, United States
Oral Abstract #3: PARTNER AD3vance (PAtient-centered Research in pediatric TransplaNt – Engaging families and Recipients – ADolescent and young ADult ADvisors)
Jim Squires, United States
Abstract #4: Citizenship-based disparities in pediatric liver transplant survival following Medicaid expansion
Yusuf Ciftci, United States
Question and Answers: Tebyan Rabbani, Nathaly Llore, Jim Squires, Yusuf Ciftci
Panel Discussion, United States
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