Addressing Rare Diseases Using Liver Transplantation

Thu
May 01 Fri
May 02

Time	Room	Session
07:00 - 08:00 \| Breakfast & Registration
08:00-08:10	08:00 Salon A-C	Salon A-C	Welcome Remarks Full Details Alisha Mavis, United States Opening Alisha Mavis, United States Opening Jody Weckwerth PA-C, United States Welcome Jody Weckwerth PA-C, United States Welcome
08:10-09:25	08:10 Salon A-C	Salon A-C	Session 1 - Non-hepatoblastoma Liver Tumors Full Details Peng Wu, United States Through the lens of the oncologist Peng Wu, United States Through the lens of the oncologist Anna Peters, United States Through the lens of the hepatologist Anna Peters, United States Through the lens of the hepatologist Jason Hawksworth, United States Robotic tumor resection Jason Hawksworth, United States Robotic tumor resection Blayne Sayed, United States Liver transplantation Blayne Sayed, United States Liver transplantation
09:25-10:00	09:25 Salon A-C	Salon A-C	Session 2 - PFEP Full Details Brittany Munn, United States PFEP chair address Brittany Munn, United States PFEP chair address Neshea Harrison, United States Patient/Family Neshea Harrison, United States Patient/Family
10:00 - 10:15 \| 10:00 - 10:15 Coffee Break
10:15-12:00	10:15 Salon A-C	Salon A-C	Session 3 - Rare Diseases that Benefit from Liver Transplantation Full Details Amrita Narang, United States WolcottRallisonSyndrome(WRS) - New concepts Amrita Narang, United States WolcottRallisonSyndrome(WRS) - New concepts WolcottRallisonSyndrome(WRS) - Immunologic considerations WolcottRallisonSyndrome(WRS) - Immunologic considerations Yaser Diab, United States Budd Chiari Syndrome - Hematologic considerations Yaser Diab, United States Budd Chiari Syndrome - Hematologic considerations Nada Yazigi, United States Budd Chiari Syndrome - Peri and post-operative considerations Nada Yazigi, United States Budd Chiari Syndrome - Peri and post-operative considerations Greg Tiao, United States Protein C deficiency - Peri and post-operative considerations Greg Tiao, United States Protein C deficiency - Peri and post-operative considerations
12:00 - 13:15 \| Lunch Breakouts & General Lunch in Exhibit Hall
12:00-13:15	12:00 Forest Glen	Forest Glen	Breakout Session: Fellows Lunch will be served in the meeting room Full Details Jim Squires, United States Breakout 1A - Fellows informal networking lunch Jim Squires, United States Breakout 1A - Fellows informal networking lunch Catherine Chapin, United States Breakout 1A - Fellows informal networking lunch Catherine Chapin, United States Breakout 1A - Fellows informal networking lunch
12:00-13:15	12:00 Glen Echo	Glen Echo	Breakout Session: Multi Disciplinary & Registry Lunch will be served in the meeting room Full Details
13:15-14:15	13:15 Salon A-C	Salon A-C	Session 4 - Can we do more to decrease wait time of children on the liver transplant list? Full Details Megan Adams, United States Paired liver exchange transplant (recording) Megan Adams, United States Paired liver exchange transplant (recording) Gabriel Gondolesi, United States Split and Domino liver transplantation Gabriel Gondolesi, United States Split and Domino liver transplantation Alexander Kroemer, United States Panel Discussion: Gabriel Gondolesi, Alexander Kroemer Alexander Kroemer, United States Panel Discussion: Gabriel Gondolesi, Alexander Kroemer
14:15 - 14:25 \| Coffee Break
14:25-15:25	14:25 Salon A-C	Salon A-C	Breakout Session: Breakout 2A - Training the Future of Transplantation Full Details Amy Feldman, United States The power of SPLIT-initiated research: Live Vaccines in an Era of Measles Outbreasks Amy Feldman, United States The power of SPLIT-initiated research: Live Vaccines in an Era of Measles Outbreasks Kyle Soltys, United States Pediatric or Transplant Surgery: Which comes first and does apprenticeship play a role? Kyle Soltys, United States Pediatric or Transplant Surgery: Which comes first and does apprenticeship play a role? Jim Squires, United States Panel discussion: Jim Squires, Sara Rasmussen Jim Squires, United States Panel discussion: Jim Squires, Sara Rasmussen
14:25-15:25	14:25 Glen Echo	Glen Echo	Breakout Session: Breakout 2B - Multi-Disciplinary Full Details Stephen Molitor, United States Antibody mediated rejection: Reviewed the basics Stephen Molitor, United States Antibody mediated rejection: Reviewed the basics Jill Plevinsky, United States Ethics of substance use/risky behaviors/ingestions in pediatric liver transplant Jill Plevinsky, United States Ethics of substance use/risky behaviors/ingestions in pediatric liver transplant
14:30 - 15:30 \| Breakouts
15:30-16:50	15:30 Salon A-C	Salon A-C	Session 5 - Metabolic Disease: To Transplant or Not to Transplant Full Details Gary Kupfer, United States Protein C deficiency - Hematologic considerations Gary Kupfer, United States Protein C deficiency - Hematologic considerations Kimberly Chapman, United States The changing face of metabolic disease – is the future in transplantation? Kimberly Chapman, United States The changing face of metabolic disease – is the future in transplantation? Andrea Gropman, United States Urea cycle disease clinical trials Andrea Gropman, United States Urea cycle disease clinical trials Hoanh Nguyen, United States The parental perspective Hoanh Nguyen, United States The parental perspective
16:50-17:20	16:50 Salon A-C	Salon A-C	Session 6 - UNOS/Advocacy Update Full Details Pamela Valentino, United States Latest from reserach and P&P Pamela Valentino, United States Latest from reserach and P&P Amber Hildreth, United States UNOS Changes and the Impact on Kids Amber Hildreth, United States UNOS Changes and the Impact on Kids
17:30 - 19:30 \| Welcome Reception & Poster Session

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REGISTRATION DESK OPENING TIMES
Thursday, May 1, 2025, 07:00-17:30 Friday, May 2, 2025, 07:00-12:00

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